Meta faces mounting questions from Congress on health data privacy


Meta is going through mounting inquiries about its entry to sensitive health-related knowledge adhering to a Markup investigation that located the company’s pixel tracking software gathering details about patients’ doctor’s appointments, prescriptions, and health conditions on hospital web-sites.

Throughout a Senate Homeland Security and Governmental Affairs Committee listening to on Sept. 14, Sen. Jon Ossoff (D-Ga.) requested that Meta — the father or mother enterprise of Facebook and Instagram — present a “comprehensive and precise” accounting of the professional medical information and facts it keeps on customers.

“There’s been substantial general public reporting, controversy, and worry about the Meta Pixel merchandise and the likelihood that its deployment on a variety of hospital systems’ sites, for example, has enabled Meta to acquire personal wellbeing care data,” Ossoff claimed.


“We want to comprehend, as the U.S. Congress, regardless of whether or not Meta is accumulating, has gathered, has accessibility to, or is storing, healthcare or health information for U.S. folks,” he additional.

In response to Ossoff’s question about whether or not Meta has health-related or wellbeing treatment details about its end users, Meta Main Product or service Officer Chris Cox responded, “Not to my know-how.” Cox also promised to stick to up with a penned response to the committee.


In June, The Markup reported that Meta Pixels on the web-sites of 33 of Newsweek’s prime 100 hospitals in America were transmitting the facts of patients’ doctor’s appointments to Meta when people booked on the web-sites. We also identified Meta Pixels inside the password-guarded patient portals of 7 health and fitness systems collecting details about patients’ prescriptions, sexual orientation, and well being problems.

Previous regulators advised The Markup that the hospitals’ use of the pixel may perhaps have violated the Wellbeing Facts Portability and Accountability Act (HIPAA) prohibitions towards sharing protected well being information and facts.

“Advertisers need to not ship sensitive data about people through our Organization Equipment,” Meta spokesperson Dale Hogan wrote to The Markup in an emailed statement. “Doing so is from our guidelines and we educate advertisers on correctly placing up Business enterprise resources to reduce this from taking place. Our process is made to filter out probably sensitive info it is capable to detect.”

Due to the fact The Markup’s investigation:

  • As of Sept. 15, 28 of the 33 hospitals have removed the Meta Pixel from their health practitioner booking webpages or blocked it from sending individual details to Fb. At minimum 6 of the seven wellness techniques experienced also eliminated the pixels from their affected person portals. The Markup achieved out to the institutions that eradicated the pixel from their web sites right after our investigation posted in June. As of push time, a few establishments — Sanford Health, El Camino Wellbeing, and Henry Ford Wellbeing — experienced responded. Go through their statements in this article.
  • Just one health and fitness method, North Carolina-dependent Novant Wellness, mailed details breach notifications to 3 million clients subsequent The Markup’s report. In the breach notification, Novant Wellbeing mentioned the pixel was added as portion of a promotional marketing campaign to stimulate use of Novant’s MyChart affected person portal, but “the pixel was configured improperly and may have allowed selected non-public information and facts to be transmitted to Meta.” On Sept. 16, Novant amended its facts breach notification put up to state that Meta knowledgeable the company that it “generally” filtered out patients’ sensitive health care data and that it did “not have details to return or ruin.” 
  • The North Carolina legal professional general’s business office mentioned it was “actively investigating” the hospitals’ details sharing just after calls from point out lawmakers for a probe.
  • At minimum five class-motion lawsuits have been submitted versus Meta contending that the pixel’s knowledge selection on medical center internet websites broke different point out and federal legislation. 1, filed from the enterprise on behalf of a Baltimore-dependent MedStar Wellness Program affected individual, statements that Meta Pixels gathered patient facts from at minimum 664 various hospitals’ web sites. The other lawsuits ended up introduced on behalf of people of Novant Well being and hospitals in San Francisco, Los Angeles, and Chicago. 

Meanwhile, developments in yet another authorized circumstance propose Meta may perhaps have a really hard time delivering the Senate committee with a entire account of the delicate wellness knowledge it holds on people.

In March, two Meta employees testifying in a situation about the Cambridge Analytica scandal advised the U.S. District Court docket for the Northern District of California that it would be really difficult for the enterprise to observe down all the information connected with a solitary consumer account.

“It would choose several teams on the ad facet to monitor down exactly the—where the data flows,” one particular Fb engineer explained, according to the transcript, which was first documented by The Intercept. “I would be shocked if there is even a single individual that can respond to that narrow dilemma conclusively.”

The engineers’ reviews echo the same concerns expressed in a 2021 privateness memo written by Facebook engineers that was leaked to Vice.

“We do not have an sufficient stage of handle and explainability around how our devices use details, and therefore we can’t confidently make managed plan adjustments or exterior commitments these as ‘we will not use X facts for Y objective,’” the memo’s authors wrote.

This report was co-published with The Markup, a nonprofit newsroom that investigates how strong institutions are employing technological innovation to alter our culture. Indication up for its newsletters in this article.

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